Published in November 2024, this national report presents findings of the 2024 Parent and Patient Reported Experience Measure surveys (PREMs). These surveys assessed various aspects of children and young people's, and their parents’ and carers’, experiences of diabetes care within the first year of care.
The surveys were available online from 24 July 2023 to 23 January 2024. Children and young people receiving care from a paediatric diabetes team, and their parents and carers, with a diabetes duration of 6 to 18 months were invited to participate. This round of PREM surveys received a total of 2712 responses, with 726 responses from children and young people, and 1986 responses from parents and carers.
While it is important to acknowledge the high levels of satisfaction with care reflected in the findings, this report also highlights areas for improvement in care following diagnosis, offering specific recommendations to commissioners, regional diabetes networks, and paediatric diabetes units (PDUs) to address variations in patient and parent experiences.